NATF is dedicated to providing you with the information you need to live your best life after experiencing a blood clot. From videos with experts addressing patient questions to printable materials and further resources, these are tools that you can use to empower yourself to make informed healthcare decisions.
Articles and Info Guides
Creating accurate and helpful educational materials is a key part of NATF’s mission to help you better understand your journey with blood clots. Below, you will find helpful handouts and pamphlets, as well as our bi-monthly newsletter, The Beat.
Printouts of these materials can be ordered online by emailing [email protected].
Here are several videos to jump-start your journey with blood clots. For more, visit the NATF YouTube Channel.
How Much Do You Know About Blood Clots?
Lifestyle Modifications to Prevent Thrombosis
A healthy lifestyle can make all the difference. Dr. Samuel Goldhaber discusses the lifestyle modifications that patients can make to help prevent blood clots. To learn more, click here.
Shared Decision Making
Shared decision making is a method that patients can use to gain more control over their care. Dr. Geoffrey D. Barnes speaks to patients about what shared decision making is and how it works here.
The Genetics of Thrombosis
Dr. Christian Ruff discusses the connection between genetics and blood clots and if a single blood test can determine your risk for cardiovascular disease and having a blood clot here.
Dr. Umberto Campia discusses the role that genetics can play in blood clots and why certain patients should consider genetic testing here.
After experiencing deep vein thromosis (DVT), some patients develop post-thrombotic syndrome (PTS). Dr. Susan Khan presents on this under-acknowledged issue here and Dr. Suresh Vedanthem provides and update here.
Are you interested in participating in a clinical trial?
Participating in a clinical trial can be a great way to get involved in thrombosis and cardiovascular research, but not every trial is right for every patient. Talk to your healthcare provider if you’re interested in learning more about eligibility for clinical trials.
Here are some opportunities available to patients:
- C-TRACT Trial (Looking for Participants) The NIH-sponsored C-TRACT (Chronic Venous Thrombosis: Relief with Adjunctive Catheter-Directed Therapy) study is designed to learn if endovascular therapy (EVT) procedures such as stent placement might reduce the severity of post-thrombotic syndrome (PTS) and improve quality of life. The C-TRACT researchers seek to enroll and follow 374 patients with moderate-to-severe PTS and blockage of the large veins draining the leg. All study participants will receive active treatment for their leg problem and will be monitored closely, and some patients will also be treated with the above EVT procedures. To learn more, please visit the C-TRACT website. If you’re interested in participating, please contact the C-TRACT Clinical Trial Manager, Angela Oliver at 1-866-974-CLOT (2568) or [email protected].
- PEPPER Trial (Looking For Participants) The PEPPER (Pulmonary Embolism Prevention after Hip & Knee Replacement) trial is investigating which blood thinner is best for preventing blood clots in patients who have total hip and knee replacement surgery. Researchers are currently looking to enroll 25,000 patients across 25 sites in North America. To learn more and to find out if the trial is recruiting near you, visit the PEPPER trial’s website. If you would like to participate, please contact the program manager, Carol Lambourne at 843-792-2913 or [email protected].
- GUARD-AF Trial (Recruiting Soon) The GUARD-AF (reducinG Stroke by Screening for UndiAgnosed atRial Fibrillation in Elderly inDividuals) trial will evaluate if detection of undiagnosed atrial fibrillation (Afib) in people age 70+ reduces stroke risk compared to usual care. Visit the GUARD-AF page at clinicaltrials.gov to learn more.
In addition to the resources that NATF provides, it is important to know about other organizations and community resources that are available to you. Take a look at these organizations here to support you:
- American Heart Association (AHA)
The AHA’s mission is to be a relentless force for a world of longer, healthier lives.
- American Society of Hematology (ASH)
ASH is the world’s largest professional society supporting clinicians and patients who are working to conquer blood disorders.
- CardioSmart: American College of Cardiology (ACC)
CardioSmart’s mission is to help individuals prevent, treat, and manage cardiovascular disease.
This site is dedicated to raising awareness about chronic thromboembolic pulmonary hypertension (CTEPH).
- Georgia Thrombosis Forum (GTF)
GTF, an affiliate of NATF, is a community service organization dedicated to spreading awareness about thrombosis in Georgia.
StopAfib.org is a global atrial fibrillation (Afib) patient advocacy organization that provides information and support for those living with Afib. The organization’s mission is to raise awareness of Afib, wipe out Afib-related strokes, improve the quality of life of those living with Afib, and enhance communication between patients and healthcare providers.
- The Johns Hopkins Venous Thromboembolism Collaborative
The VTE Collaborative develops educational resources to engage patients and their loved ones as partners in blood clot prevention.
- World Thrombosis Day (WTD)
WTD takes place annually on October 13. The campaign seeks to increase global awareness of thrombosis, including its causes, risk factors, signs/symptoms, and evidence-based prevention and treatment.