Vasculearn Network VTE Support Groups

The Challenge

Patients with blood clots often experience fear of recurrence, uncertainty about prognosis, mistrust of the healthcare system, and difficulty navigating treatment options. Feelings of isolation are common, particularly among newly diagnosed patients or those living with long-term complications such as post-PE syndrome and chronic thromboembolic pulmonary hypertension (CTEPH). Existing educational interventions alone were not sufficient to address these needs.

The Solution: VLN VTE Support Groups

VLN created a network of specialized VTE support groups, each co-facilitated by a clinician and VLN staff member to ensure accuracy, inclusivity, and psychological safety. Current offerings include:

• Blood Clot Education Group – focuses on ongoing education

• Blood Clot Support Group – provides emotional support during the 

• Women’s Support Group – addresses sensitive issues such as pregnancy, contraception, and menstruation

• LongPE/CTEPH Support Group – for patients with chronic complications after a PE

• Spanish-Speaking Support Group – provides culturally and linguistically tailored support for patients and caregivers whose first language is Spanish, hosted by a Spanish-speaking clinician

Planned expansions: additional groups for caregivers, LGBTQIA+ patients, and young adults